Published on May 3, 2017
Bonnie Rochman is an award winning health and science writer. Her work has appeared in Time magazine, Time.com, O – The Oprah Magazine, Parenting, Babble, Double X/Slate, Cookie, and The News & Observer.
Is embryonic disease screening a slippery slope toward eugenics? Should doctors disclose predispositions to inheritable diseases? Would you want to know that your child had a genetic mutation? In her book, “The Gene Machine”, Ms. Rochman explores these hot-button questions, guiding us through the gene technology’s effect on medicine, bioethics, health care, and more.
Video and more on the book below
A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions
Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn’t clear, would you want to know?
In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora’s box of possibilities?
Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human.